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About the role
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The Defeating Epilepsy Foundation®
Volunteer Board Leadership Position
Term: One year, renewed annually
Position Overview
Help make our website a welcoming, professional, and reliable resource for the
community.
The Chief Information Officer will oversee the maintenance and ongoing improvement of
the foundation’s website. This person will keep pages current, improve the visitor
experience, and use website analytics to help more people discover and engage with
our educational resources, programs, and opportunities for support.
This role is ideal for someone who enjoys website management, problem-solving, and
using technology to advance a meaningful cause.
Hours: 8 hours per month
Key Responsibilities
Maintain the website: Regularly check for broken links, display issues, outdated
information, and technical problems, coordinating repairs as needed.
Maintain a professional appearance: Ensure consistent formatting, clear navigation,
readable content, and effective presentation on computers, tablets, and phones.
Update website pages: Work with leadership and volunteers to publish and revise
information about programs, educational resources, events, fundraising campaigns, and
volunteer opportunities.
Improve accessibility: Help make the website easier to use for visitors with disabilities
through accessible layouts, descriptive image text, and other practical improvements.
Measure website activity: Use analytics to track visitor numbers, traffic sources, popular
pages, and engagement with key resources.
Develop a growth plan: Recommend improvements that help attract visitors, encourage
repeat visits, and increase participation in foundation programs.
Support search visibility: Improve page titles, descriptions, organization, and other
search engine optimization practices so people can find relevant resources.
Collaborate with marketing: Work with the Chief Marketing Officer to connect social
media campaigns with website content and measure resulting activity.
Support website reliability: Coordinate backups, software updates, appropriate account
access, and security maintenance with relevant service providers.
Board Participation and Accountability
The Chief Information Officer is required to attend monthly board meetings and present:
Website updates and completed improvements.
Website traffic and engagement results.
Progress toward agreed-upon goals.
Upcoming priorities, technical challenges, and requests for assistance.
The foundation’s leadership and board will work collaboratively with the Chief
Information Officer to identify the resources and support needed to achieve these goals.
Preferred Qualifications
Experience maintaining websites or using content management systems such as
WordPress.
Familiarity with website analytics and basic search engine optimization.
Understanding of website accessibility, mobile usability, and professional design.
Strong organizational, communication, and problem-solving skills.
Ability to explain technical needs clearly and collaborate with volunteers.
Commitment to the foundation’s mission and respectful, inclusive communication.
Nonprofit experience is welcome but not required.
Opportunity to Make an Impact
Your leadership will help individuals, families, caregivers, and professionals find trusted
information and connect with our foundation. By improving our website and expanding
its reach, you will support people affected by epilepsy, neurological conditions, and
neurodivergence.
Work arrangement
Yes
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