Chair of the Board of Trustees

Chair of the Board of Trustees – Access to Treatment Foundation
Location: UK-wide / Remote
Commitment: Approximately 4–8 hours per month, with additional involvement during establishment
Remuneration: Voluntary (reasonable expenses reimbursed)
Organisation: New charity in formation, seeking registration in England and Wales
About the Foundation
Access to Treatment Foundation is a new charitable initiative being established to help people living with serious, rare and life-limiting medical conditions access potentially life-changing treatments that may otherwise be financially or geographically inaccessible.
A central part of our proposed model is establishing dedicated individual treatment-access fundraising campaigns, alongside a general unrestricted charitable fund.
Drawing inspiration from established children’s medical fundraising charities, we aim to develop a similar framework focused particularly on adults facing barriers to treatment.
The Opportunity
We are seeking an experienced and independent Chair of the Board of Trustees to help establish the foundation and provide strategic leadership during its formative years.
This is an opportunity to shape a new charity from inception and help build an organisation with the potential to make a meaningful difference to patients and families.
Key Responsibilities
* Lead and chair Board of Trustees meetings, ensuring effective governance and decision-making.
* Guide the foundation through its establishment and Charity Commission registration.
* Help recruit, develop and coordinate an effective, independent trustee board.
* Oversee the development of charitable objectives, governance policies and beneficiary eligibility criteria.
* Ensure appropriate financial oversight, regulatory compliance and management of conflicts of interest.
* Work alongside the founder to develop the foundation’s strategy, fundraising model and long-term sustainability.
Who We’re Looking For
Ideally, applicants will have previous experience as a charity Chair, Trustee, senior charity executive or board leader.
We are seeking someone with strong governance experience, sound judgement, integrity and the confidence to provide independent oversight and constructive challenge.
Experience establishing or growing a charity would be particularly valuable.
Independence and Governance
The founder has personal experience of barriers to accessing medical treatment and hopes to be considered for the foundation’s first individual beneficiary campaign, subject to legal review and independent approval.
The founder will not initially serve as a trustee or participate in decisions concerning their own treatment funding. The Chair and independent board will retain full authority over charitable decisions.
Time Commitment
We anticipate an initial commitment of approximately 4–8 hours per month, with additional involvement during the establishment and registration phase.
Meetings will primarily take place remotely, approximately every 4–6 weeks initially, moving towards quarterly meetings once established.
How to Apply
Please send your CV and a short expression of interest outlining your relevant experience to:
enquiries@accesstotreatment.org.uk
We welcome informal conversations with prospective applicants.
Access to Treatment Foundation
Supporting Access. Improving Lives.

Work arrangement
Yes