Director, Patient Services, Rare Neuromuscular Disorders

Location: Remote
Reports To: Head, Market Access
About This Role:
The Director, Patient Services, Rare Neuromuscular Disorders plays a critical role in facilitating patient access by leveraging their deep expertise in coverage, payer policies, and patient support ecosystems. This position owns the relationship and ultimate operational accountability for ITF’s patient support services and SP fulfillment.
The Director will lead the strategic design, business rules optimization, and daily operational execution of the ITF ARC (Access, Resources, and Care) program, ensuring an uninterrupted, high-touch journey for patients, caregivers, and providers navigating treatment with DUVYZAT™ (givinostat). Additionally, the Director will manage a specialized in-home lab monitoring program.
What You'll Do:
Exclusive Hub & SP Management
Serve as the primary relationship manager and strategic point of contact for our exclusive, combined Hub/Specialty Pharmacy partner.
Manage day-to-day operations, ensure vendor accountability, and continually optimize time-to-first-fill, overall conversion, and persistency metrics.
Business Rules & Operations
Maintain and update all hub business rules, communication workflows, and standard operating procedures (SOPs).
Continually refine the ITF ARC program framework to eliminate commercial or government access barriers and minimize pipeline drop-offs.
In-Home Lab Monitoring Program
Direct the third-party partner responsible for the specialized in-home lab monitoring program.
Ensure seamless operations, data aggregation and compliant reporting flows back to prescribing healthcare providers (HCPs) and ITF.
Data Integration & Reporting
Maintain and enhance robust data exchange and analytics pipelines with our Hub/SP and ancillary vendors.
Synthesize complex patient funnel metrics, daily data feeds, operational KPIs, and adherence trends into actionable insights for leadership.
Cross-Functional Collaboration
Partner closely with the field-based Field Reimbursement Manager (FRM) and national accounts teams to provide personalized issue resolution, address complex appeals, and resolve localized access challenges.
Maintain tight alignment with Marketing, Sales, Patient Advocacy, Medical Affairs, and Legal.
Patient Access Support Programs
Oversee the compliance, eligibility and execution of commercial co-pay assistance, QuickStart/